National Strategic Action Plan for Rare Diseases

Publication date:
26 February 2020

Last updated:
27 February 2020

Publication type:
Strategy or framework

Intended audience:
General public

Description:
The National Strategic Action Plan for Rare Diseases is the first nationally coordinated effort to address rare diseases in Australia. Rare diseases are complex but share countless commonalities. This action plan addresses this common ground. It outlines a comprehensive, collaborative and evidence-based approach built on 3 principles:

  • person-centred
  • equity of access
  • sustainable systems and workforce